From the Heart 999 -Living with Prinzmetal's Angina

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Where did the year go?

Golly, well it has been an incredibly long time since I have written a full blog post, in fact it was almost this time last year that I...

A Motherless Child

I think I ought to put a little warning on this blog, it is WAY outside my normal writing about my health conditions. This year I have...

Radio Silence

Sorry for being so quiet over the last few months, I have been really struggling with the symptoms of malnutrition, which have left me...

Digital Venting

If there is one thing you can count on this illness to do, it is to change. Every time you think you have it sussed and have worked out a...

Food, glorious food!

A week ago I had spinal surgery, all went well and they removed the mass that was pushing against the nerve and cord. To do this they had...

Taking Control

I now have a port-a-cath fitted. This is a small device that sits under my skin and has a line that sits at the top of my heart. It is a...

Aiming High!

I promised an update of the goals that I set for last year, well first of all I should share those goals with you: 2017 Goals PhD -...

Where has the time gone?

Wow, well I can’t believe this, but Christmas is over and we are rapidly heading into New Year. The run up to Christmas was an...

Health Update

After all the excitement of the flying, I thought I would take the time to do a bit of a general update. The last couple of weeks has...

What Next?

I had a couple of shocks. One was when I was leaving the hotel after the FSDP scholarship and a lady asked if I wanted help with my case....

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From the Heart 999

Living with Prinzmetal's Angina and Ehlers Danlos Type 3