To Operate or not that was the question. Well good news no operation yet. I have bi lateral patellofemoral anterior knee pain cause by patellofemoral maltracking. For the moment we are going to carry on with bracing and exercises to see if we can put off surgery for as long as possible. The knee consultants gleefully said to me “ohhh we don’t get to see someone with Ehlers Danlos very often”. Interesting or different is never good in medical terms, I would love to be boring w

To begin I will finish the story from last week. I have had the results of the biopsy and everything is fine. I need to go back again in 6 weeks for another ultrasound and biopsy, but so far so good. This week, I got to see my two favourite doctors in one day – I have to say that, they both have the website details for this blog. Firstly I saw my lovely cardiologist this week, who actually gave me a really nice complement about how well I have been dealing with this. Also thi

A little bit of a change in pace this week, EDS and angina took a backseat for a change. Instead this week has been predominantly filled boobs and talk of boobs. See a week or so ago I found a lump, after it hadn’t gone after a few days I went to my fabulous GP. I always expect that the GP won’t find anything I will be sent away branded a hypochondriac. However, she did find the lump and sent me away to the rapid breast assessment unit. Fortunately with the healthcare that my