To Operate or not that was the question. Well good news no operation yet. I have bi lateral patellofemoral anterior knee pain cause by patellofemoral maltracking. For the moment we are going to carry on with bracing and exercises to see if we can put off surgery for as long as possible. The knee consultants gleefully said to me “ohhh we don’t get to see someone with Ehlers Danlos very often”. Interesting or different is never good in medical terms, I would love to be boring when it comes to my health. The next consultant is an orthopaedic specialist in feet and ankles, my ankles keep giving way, which is why I wear ankle supports and the joints in my big toes are ridiculously painful, I am g

To begin I will finish the story from last week. I have had the results of the biopsy and everything is fine. I need to go back again in 6 weeks for another ultrasound and biopsy, but so far so good. This week, I got to see my two favourite doctors in one day – I have to say that, they both have the website details for this blog. Firstly I saw my lovely cardiologist this week, who actually gave me a really nice complement about how well I have been dealing with this. Also things seem to be stable (for me) with my heart - what that means in reality is between 15-25 angina attacks a day of varying strength and duration. The good news is that the erratic heart rates seem to have settled down, s

A little bit of a change in pace this week, EDS and angina took a backseat for a change. Instead this week has been predominantly filled boobs and talk of boobs. See a week or so ago I found a lump, after it hadn’t gone after a few days I went to my fabulous GP. I always expect that the GP won’t find anything I will be sent away branded a hypochondriac. However, she did find the lump and sent me away to the rapid breast assessment unit. Fortunately with the healthcare that my work provide I was able to get an appointment at the private unit the next day. Let me tell you, that is not conducive for a good nights sleep. Even though I am 99% certain it’s just a benign lump as I have had them twi