Well it has been a busy few weeks, the week after my elbow surgery I developed pleurisy and ended up having an unscheduled trip to the hospital. It seems I had a massive infection, which has now been treated by a huge dose of antibiotics. The surgery site itself is healing well and my surgeon has some amazing sewing skills, even at this early stage the wound looks incredibly neat and tiny, soon you will not even be able to see the scar. That an incredible achievement in someone with EDS. I have started physio on my elbow, so far I have a great range of movement. I am back in the brace but hopefully that will come off in a couple of weeks. I have also started physio on my ankles, which sort o

We reached a stage earlier this year where my cardiologist sat me down and told me there is nothing that can be done about my heart condition. After 18 months of trialling all the different possible medications for Prinzmetal’s angina we had reached a point where it is medically untreatable. The medication either made me very ill, reducing my heart rate in the 20s which resulted in a number of unscheduled and terrifying trips to hospital. When you are being loaded into the back of an ambulance no one wants to hear the paramedics ensuring they have spare de-fib batteries just in case! Or the medication had no effect on the angina. We also looked at surgical options but a professor of cardiova