If there is one thing you can count on this illness to do, it is to change. Every time you think you have it sussed and have worked out a way to carve some semblance of a life, it changes and knocks you on your ass again. Without fail, every single time I think I have got a life, I am doing some PhD work or maybe doing some flying, something happens and kicks it into touch and prevents me from doing it. At the moment I am in an awful flare up of the gastroparesis, I have lost 3 stone in weight over the last 3 months and am severely malnourished. I could handle it for the first couple of months but now my reserves have been used up and I am exhausted, weak and can barley walk around my house