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I know I said I miss my wheels but.....

March 28, 2016

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Rebecca

 

Well the good news is that I have had no emergency trips into hospital this week, only planned appointments. I had a brain and cervical spine MRI which I should get the results in a couple of weeks. I saw my cardiologist, who is still hoping that coming off a couple o...

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And the results are in!

March 20, 2016

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Rebecca

 

20 months, 12 Consultants, 2 professors, a GP and numerous emergency doctors and finally we have a diagnosis.....but more about that later.

 

The week started off so nice and quiet, my heart rate was still slow after my trip to A&E last week but not frighteningly so, ge...

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It’s not all sunshine and roses

March 15, 2016

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Rebecca

 

Recently (after a minor prang) I have been thinking that the sensible thing to do would be to trade down my car, go for something smaller, cheaper etc etc. My car is beautiful, it was ordered and made to my specifications and has so many add ons and gadgets, but it fi...

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I can’t go to hospital I need to wash my hair!

March 13, 2016

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Rebecca

 

This is the exact reasoning I used to my paramedic husband who was insisting on calling an ambulance. Well you can guess how far that argument got me! 10 minutes later we had 2 ambulance cars and an ambulance parked outside the house and 7 ambulance employees inside t...

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Testing Times

March 6, 2016

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Rebecca

 

So finally I have had the genetic test, hopefully this will shed some light on the underlying condition, now all we have to do is wait patiently for anything up to 8 weeks.  I have been in a lot of pain with my angina, elbow, knee and spine, which means I am not sleep...

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    From the Heart 999

    Living with Prinzmetal's Angina and Ehlers Danlos Type 3