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The curse of looking well.

July 30, 2016

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Rebecca

Nobody wants to look unwell, in fact many of us that are chronically ill do our level best to hide that we are ill from the outside world. However, it always results in those lovely conversations of 'are you sure? You don't look ill.’ How do you politely tell someone t...

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Feeling Hot Hot Hot!

July 24, 2016

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Rebecca

With the heat comes its own set of problems. So here in the UK we have been having a little bit of a heatwave with the temperatures on one of the days being up to 36 degrees. This is a little too hot for me and yes I can hear you cry - you just can't win with this lady...

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Can’t we all just get along and help each other.

July 17, 2016

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Rebecca

Well I was going to start off this post by saying what an awful I have had. Then as the week unfolded I realised how amazingly lucky I am. Between the atrocities in Nice, the attempted coup in Turkey, a colleague of my husbands in the ambulance service struggling with...

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Marching Forwards

July 10, 2016

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Rebecca

This has been another light week on hospital appointments which is nice and I have even managed to get a little PhD writing done. The hospital appointment I did have was with an orthopaedic surgeon who specialises in ankles and feet. I have been getting pain in my ankl...

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A day in the life!

July 3, 2016

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Rebecca

There isn’t a lot to update on this week, it has been nice and quiet with only routine appointments. Therefore, in conjunction with www.telmnow.com I have written, this post, which as the title suggests is an insight into a typical day for me.

So there’s an easy place t...

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    From the Heart 999

    Living with Prinzmetal's Angina and Ehlers Danlos Type 3