There is a certain cruelness to this disease in that when your body aches and you are in pain and tired, you can’t sleep. I know, I know,...

On the first day of Christmas, my EDS gave to me a great deal of angina. On the second day of Christmas my EDS gave to me two spinal...

I saw my lovely spinal surgeon this week, who I am beginning to think knows me a little too well or is ganging up on me with my husband....

My sister text me the other day to say this week’s Grey’s Anatomy had featured an EDS case. Anyone with a rare condition will tell you it...

This blog entry is going to be a little bit of a different from my normal style and is going to be a diary reflecting the spinal surgery...

Not only was it my birthday this week but it is also the blogs birthday – I have been writing for 1 year. Thank you to all you lovely...

To be honest it has been a bit of a rough week, I have been suffering with a lot of exhaustion and pain. Pain is something I don’t talk...

Well it looks like I am going to be having spinal surgery in the middle of November. My surgeon and I have decided to go for a repair of...

Where are we? So, I still haven’t been to the GP about the tremors – I did try and get an appointment but I can’t get a routine...

The last couple of weeks have been a bit quieter in terms of hospital appointments, though saying that I have had 4 in the last...