From the Heart 999 -Living with Prinzmetal's Angina

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A burning desire to sleep

There is a certain cruelness to this disease in that when your body aches and you are in pain and tired, you can’t sleep. I know, I know,...

The 12 days of EDS

On the first day of Christmas, my EDS gave to me a great deal of angina. On the second day of Christmas my EDS gave to me two spinal...

Rest! Rest! I am not sure what that is.

I saw my lovely spinal surgeon this week, who I am beginning to think knows me a little too well or is ganging up on me with my husband....

What comes after the relief of a diagnosis?

My sister text me the other day to say this week’s Grey’s Anatomy had featured an EDS case. Anyone with a rare condition will tell you it...

The Backbone Diaries

This blog entry is going to be a little bit of a different from my normal style and is going to be a diary reflecting the spinal surgery...

Happy Birthday!

Not only was it my birthday this week but it is also the blogs birthday – I have been writing for 1 year. Thank you to all you lovely...

It’s OK to say I am having a bad day

To be honest it has been a bit of a rough week, I have been suffering with a lot of exhaustion and pain. Pain is something I don’t talk...

Still Rocking

Well it looks like I am going to be having spinal surgery in the middle of November. My surgeon and I have decided to go for a repair of...

Can you hear me?

Where are we? So, I still haven’t been to the GP about the tremors – I did try and get an appointment but I can’t get a routine...

It all started off so well.

The last couple of weeks have been a bit quieter in terms of hospital appointments, though saying that I have had 4 in the last...

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From the Heart 999

Living with Prinzmetal's Angina and Ehlers Danlos Type 3